After receiving such a variety of high-quality abstract submissions, the 38th Annual EAU Congress in Milan is shaping up to be the largest platform for sharing breaking urology research and innovations in 2023! From the 4,570 abstracts submitted for presentation, 1,304 have been accepted, as well as 127 video abstracts, which makes a total acceptance rate of 31.3%. You can now view the full list of selected abstracts that […]

On the 7th of December 2022 WFIPP took part as one of the partners in the ‘P’-Word Project for a first ever session at the European Parliament in Brussels, hosted by MEP Tomislav SOKOL. The focus of the meeting was how to deal with incontinence issues, not only in relation to prostate and bladder cancer, but […]

The World Federation of Incontinence and Pelvic Problems (WFIPP), has given Minze Health the opportunity to conduct a short survey among its patients via the WFIPP websites, its member organizations and other healthcare professionals within its network. One of the main questions in the survey is to ask whether patients would pay out of pocket […]

Adult incontinence products are a bigger waste problem than nappies, according to researchers. (ABC News: Jon Kerr) Adult incontinence products outnumber baby nappies in landfill — and could outstrip them 10-to-one by 2030, according to a new Australian study. Key points: Experts want policy change to divert adult incontinence products from landfill They say these products are a bigger […]

Evidence of PFAS in sanitary and incontinence pads The findings come on the heels of other testing that found the forever chemicals in some popular tampons. EHN Staff December 02, 2022   Twenty-two sanitary pads, panty liners and incontinence pads have detectable levels of fluorine, an indicator of the group of chemicals known as PFAS, […]

Following the consultation with our members, EPF has finalised its official position statement on the EHDS proposal. The statement, together with the amendments, will guide our advocacy strategy and will shape our interactions with the co-legislators. Our key recommendations put the patients at the very heart of this initiative. Trust, transparency, meaningful involvement of patients and their representatives, […]

Some interesting articles in this month’s newsletter, The Public Edition, from Bowel & Bowel UK

On 15th November 2022 the EU Health Coalition has published a vision for European health, supported by a set of concrete recommendations and policy proposals designed to make it happen. The Coalition is a multi-stakeholderinitiative exploring the future of healthcare in Europe. Its new vision will be launched today in Brussels at the 3rdEU Health […]

Healthcare is undergoing a major transformation, and technology will transform how we receive or deliver healthcare. The Dynamic Coalition on Digital Health, Internet Governance Forum, United Nations, is preparing the “Digital Health” report for 2022, for which we are conducting primary research via a survey. We would like to have your valuable input on it. It would be great if […]

The PIONEER Big Data Platform offers a central and federated state-of-the-art Big Data analytic platform for prostate cancer. The platforms anonymous data is harmonised to the European Common Data Model, OMOP-CDM, following all legal and ethical requirements.  The PIONEER Big Data platform brings together diverse datasets, contributed by our Partners and Associated Members, including the […]

In the SUISSE MPC 2 study (Stress Urinary Incontinence Study to assess Safety and Efficacy of Muvon’s Muscle Precursor Cell Therapy), researchers at the University of Zurich are currently investigating a novel treatment option. This is a so-called “Phase II study”, which is designed to assess the efficacy and safety of the new treatment option.
MUVON THERAPEUTICS IS URGENTLY LOOKING FOR PATIENTS WHO ARE WILLING TO TAKE PART IN THIS TRIAL IN SWITZERLAND.

EPF joined the stakeholders’ consensus response to the proposed European Health Data Space (EHDS) On 20 October, EPF joined a group of 29 stakeholders in welcoming the European Commission’s proposal on the European Health Data Space (EHDS). The stakeholders, including medical professional and research organisations, patient representatives, industry associations, and data collaborations, strongly support the aims […]

We are pleased to present our compact Gastein Outcomes featuring an insight into discussions and key takeaways from our European Health Forum Gastein (EHFG) 2022 hybrid conference, accompanied by the witty illustrations of Floris Oudshoorn. Enjoy!

On 17 and 18 October, the Health Outcomes Observatory (H2O) project held its General Assembly meeting in Basel, Switzerland. This was the first in-person general assembly for H2O, which began in October 2020. Our EPF colleagues Lyudmil, Valentina , and  Estefania attended the meeting to represent our work on bringing patient engagement to the core of the project. The event was kicked-off […]

EUnetHTA recently started an assessment on a medical device product for the treatment of men over 18 years of age with bothersome urinary symptoms associated with recurrent anterior urethral stricture. EUnetHTA 21 highly values patient involvement. What are we looking for? Patient organisation input We are seeking patient organisation input via an online questionnaire. This questionnaire aims […]

On 21-23 September, the PROPHET project held its inaugural meeting in in Rome at the Università Cattolica del Sacro Cuore, the project coordinator.   PROPHET is a Horizon Europe project, composed of 18 European partner organisations. The project aims to create a personalised prevention roadmap for the future of healthcare in Europe. The roadmap will be co-created together with […]