SHARE YOUR EXPERIENCE! Following the 12 May introductory webinar on how patients perceive involvement in HTA processes, the 360 HTA Patient Involvement partners have launched a survey to better understand how patients are involved in HTA currently, and how to do it better in the future. All stakeholder groups (patience, carers, industry, academics, health care providers, HTA agencies) who […]

Bladder health: “Breaking Boundaries”
Bladder Health UK and ITN Productions Industry News have produced a news-style programme Bladder Health: Breaking Boundaries to raise awareness and understanding of bladder health, addressing the stigma and challenges for sufferers and exploring research and treatments in the field.

The EAU22 Patient Day in Amsterdam will be an event that you do not want to miss. Corinne Tillier, uro-oncology Nurse Practitioner at the Netherlands Cancer Institute, Amsterdam, PhD student and EAUN Board member, encourages nurses to attend Patient Day!

The Swiss Association of Bladder Problems will organize a series of 9 webinars (in German) for people living with bladder problems. The first webinar will be on Tuesday 17th May at 19.00 hrs (one hour). You can attend the webinar for free. Please send a mail to info@inkontinex.ch to obtain the zoom access code.

FREE online DEMO MAPLe® – A targeted and effective treatment of Pelvic Floor Dysfunctions starts with an accurate diagnosis (EMG / ElectroMyoGraphy). With MAPLe one can really make the difference for the patient and take the diagnosis and treatment of Pelvic Floor Dysfunctions in the hospital and pelvic floor physiotherapy practice to a higher level. MAPLe is developed for […]

The European Commission, with the help of external contractors, is currently conducting a study on best practices in public procurement of medicines to feed into the work on the EU Pharmaceutical Strategy. As part of this study, stakeholders, including patient organisations, are invited to share their views on public procurement of medicines through an online survey. […]

ECCRT, The European Centre for Clinical Research Training, will be organising a free webinar on May 20th, during the International Clinical Trials Day. Clinical trials have been evolving over the last decades, improving the journey of the patient who is playing an active role in the drug development cycle. This evolution resulted in numerous initiatives […]

EPF is currently looking for a part-time Project Finance Officer for 8 months, starting in May to December 2022.
The Project Finance Officer supports the day-to-day administration of EPF’s finances of EU-funded projects. All the key areas of responsibility and the expected knowledge and skills are included in the attached job description.

Make your voice heard: Take the new global Rare Barometer survey and share your experience of seeking a diagnosis! We need your help to ensure as many people as possible from the rare disease community complete the survey. The more people will take the survey, the stronger our voice will be! You can access the […]

Men’s Health Podcast: Insights into the Causes, Impact, and Treatment of Erectile Dysfunction LISTEN TO THIS PODCAST In this podcast, Jonathan Sackier, host of the EMG-Health podcast, discusses important topics in men’s health with a focus on erectile dysfunction (ED). Two leading experts in the field share their perspectives, knowledge gaps in the disease area, […]

In the past week, we have been witnessing the rapidly unfolding situation in Ukraine with great sadness and concern. As expressed in our earlier official statement, the EAU, as a scientific European professional medical association with members from across the world, is absolutely against the use of violence in Ukraine. We oppose wars as a means […]

  I’m 57 years old and have been an adult who wets the bed for about 5 years now. It started after my divorce, and I haven’t been able to shake it since. At first, it was just 1 or 2 nights per week but it’s progressed to the point where I have to wear protection every night. My […]

DEADLINE FOR APPLICATIONS IS 15 APRIL 2022 EOB.
The Summer Training Course for Young Patient Advocates (STYPA) is a European Patients’ Forum (EPF) training dedicated to young patient advocates (18-30 years old).
We are back this year with a new edition of STYPA that will focus on the delicate topic of sexual health and well-being for young people with chronic conditions

For your information, please find below the weekly newsletter from UroToday with some very interesting video’s and articles 

Official reintegration of the Operating Grants instrument within the EU4Health Work Programme On 14 January the European Commission adopted its 2022 EU4Health Work Programme. EPF is particularly happy to share that this document marks the official reintegration of the Operating Grants instrument for health NGOs – an essential tool that will prove to be fundamental in building a […]

QUESTION: I’M A 45-YEAR-OLD FEMALE AND I’VE HAD 4 UTIS IN THE PAST YEAR!  PRIOR TO THAT, I HAD ONLY HAD 2 UTIS MY WHOLE LIFETIME.  AT THIS POINT, I’M RELUCTANT TO HAVE SEX WITH MY PARTNER AS OFTEN AS I’D LIKE BECAUSE I’VE HEARD THAT SEX CAN BE A CAUSE OF UTIS. I FEEL […]