EPF’s Patient Organisations’ Manifesto was presented for the first time at their anniversary event in April 2023, read by EPF Board and Youth Group Member Konstantina Boumaki. This roadmap for the overall patient movement in Europe in a multi-stakeholder format outlines their vision of European patient advocacy for the next 10 years and forms an […]Read more
On behalf of the WFIPP Executive Council, we are delighted to welcome Adopec Chronic Pelvic Pain Association as a new member! We are thrilled to have them on board and look forward to working together to make a positive impact on our community and achieving great things together.Read more
The European Health Data Space (EHDS) is a proposal for a regulation from the European Commission. This regulation complements the GDPR and makes it possible to share health data on a national and European level for primary and secondary use. Please see below the statement endorsed by key stakeholder organizations representing patients, healthcare professionals, researchers and industrial partners with regard to legislative refinement of the EHDS as published on 4th December 2023.Read more
BASEL, Switzerland, Nov. 16, 2023: Versameb AG (“Versameb”), a pre-clinical stage company focused on transforming RNA therapeutics to treat unmet medical needs, today announced that the U.S. Food and Drug Administration (FDA) has cleared its Investigational New Drug (IND) application of VMB-100, a potency enhanced messenger ribonucleic acid (mRNA) encoding human insulin-like growth factor-1 (IGF […]Read more
If you struggle with bladder leaks during normal daily activities like coughing, sneezing, or during physical activity, you may be a candidate for Bulkamid.
Bulkamid is a minimally invasive and long-lasting treatment option for bladder leaks caused by Stress Urinary Incontinence (SUI).
When given the choice of treatment options for SUI, the majority of women choose Bulkamid.
The Commitment to Collaboration in Continence Care (4Cs) multistakeholder group met in Valencia on 10 November 2023. The meeting objectives were to: a) review progress made in 2023, and b) agree priorities for 2024, aligned with the 4Cs objectives. Discussion focused on maintaining momentum from the 1st EU Continence Health Summit “An Urge to Act”, which was held on 8 November in Brussels, Belgium.Read more
The European Institute for Women’s Health issued its 2024 EU Manifesto for Women’s Health! The document outlines the need for action on women’s health and provides key facts and figures on the current state of play for women in the EU. It describes the key priorities for improving the health and wellbeing of women across the […]Read more
On 10 November 2023 a joint SINUG EAU WFIPP session with Spanish patient representatives from Spanish Prostate Cancer Association, Chronic Pelvic Pain Association Medulla Lesions Association and of course WFIPP took place. The meeting of like minds where the clinical and patient perspectives join forces to address the challenges and session objectives of how to […]Read more
NEWSLETTER | Stay up to date on Health Technology Assessment (HTA) with the EUCAPA’s newsletter Is Health Technology Assessment (HTA) designed with patients in mind? As governments and public institutions assess the impact of new health technology, the patient perspective has to remain the number one priority. Patients, and their advocates, must have access to the […]Read more
In a transformative moment for pharmaceutical regulation within the European Union, the European Patients’ Forum (EPF) calls to redefine what we mean by “unmet medical need.” This critical definition goes beyond the realm of research and development, reaching deep into the core of regulatory data protection, conditional marketing authorisations, and scientific support. Patient organisations represented by EPF are […]Read more
Your moment to shine is here! If you would like to be considered for one of the prestigious EAU Awards, applications are now openRead more
The EAU will again conduct an international survey to assess the general knowledge on urology. We have asked over 3,000 members of the public from the United Kingdom, France, Germany, Italy, and the Netherlands 10 questions on the topic of Incontinence. If you are interested in conducting a similar survey yourself at a local or national level, we would be happy to send you the survey questions for translation.Read more
Incontinence: The Engineering Challenge and the program can now be viewed on the conference web page. Hosted by the UK Institution of Mechanical Engineers, this is the fourteenth in a series of two-yearly conferences that aim to stimulate, inform, challenge and encourage those keen to develop improved technology for diagnosing, treating or managing incontinence. The […]Read more
Watch Pedro Blasco de Hernandez, Mary Lyn van Poelgeest, Philip van Kerrebroeck, and Eamonn Rogers discuss the 4Cs project, the increasing role of patients in the treatment of their diseases, and the importance of collaboration between scientific organisations and patient advocates.Read more
The summer issue of the Patient Office Newsletter highlights incontinence and its impact on patient quality of life. World Continence Week was featured with information on how you can tune in to webinars, watch the 4Cs roundtable, or explore the Patient Information resources.Read more