About this 2021 survey The Covid-19 pandemic has permanently changed the landscape of healthcare—both for your own organisation, and for the patients known to you. The challenges the pandemic imposed on patient groups and patients have been substantial. Few studies have explored the effectiveness of pharma at providing support and help to patient groups and patients […]Read more
What do the public think about faecal incontinence?
The National UK charity ‘Bowel Research UK’ has launched a survey on faecal incontinence. In order for this new project to be a resounding success, in every sense of the word, it is vital that as many people as possible complete the survey which only takes 10 to 15 minutes to complete.
EAU updated online course “Overactive bladder: mechanisms and management” on the effective management of pathophysiological conditions affecting the lower urine tract consists of seven chapters:Read more
A global grassroots campaign led by persons living with a rare disease and their families has succeeded in securing the adoption of the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”Read more
On 25 January 2022, the IMI ConcePTION project is organising an online workshop on improving how we collect information to understand the risks and benefits of medicine use in pregnancy and breastfeeding. We invite women, their partners, health care professionals, researchers and representatives from companies that develop medicines and authorities that approve them to join us.Read more
WFIPP wishes you a Merry Christmas and a Happy New Year
We wish you good health, peace, joy and prosperity throughout the coming year.
Thank you for your support and partnership.
TOGETHER WE CAN!!!!Read more
We’re happy to announce the release of the EPF Congress 2021 Summary Report.
Featuring in-depth breakdowns of each session, along with key quotes, stats and figures, this report provides a great overview of the key learnings during the virtual four days Congress as well as a link to all of the recorded sessions.
Please watch this animated video from our American member organization NAFC!!Read more
Please take your time to to read some interesting articles in the National Association for Continence (NAFC) Newsletter of this month.Read more
Calling for patient co-creation in the Global Patient Safety Action plan 2021 – 2030 This year, all World Health Organization’s Member States are on record as having adopted the Global Patient Safety Action Plan 2021–2030 (GPSAP 21-30) to eliminate all avoidable harm in healthcare. On Patient Solidarity Day 2021, we are calling on our leaders to act on […]Read more
WFIPP is happy to contribute to this survey launched by Plataforma de Organizaciones de Pacientes to learn more about the current level of participation of patients’ organisations in their respective Health Care Systems in Europe. This is an exciting opportunity to contribute to research that will improve the understanding of the patient movement at the […]Read more
Moira Tzitzika, a psychologist and psychosexologist certified from the European Society of Sexual Medicine, wrote this interesting piece, published on EPF’s website, on the sexual health and well-being of young people with chronic conditions. Romantic and sexual relationships play an important developmental role in emerging adulthood and of course sexual activity has a strong impact […]Read more
Participate, support and/or disseminate Active Citizenship Network’s EU online survey “The impact of the COVID-19 pandemic on non-communicable and chronic patients’ therapeutic adherence across Europe” with the aim to better contribute – starting from the citizens’ and patients’ perspective – on understanding the impact of the Covid-19 pandemic on non-communicable and chronic patients’ therapeutic adherence. […]Read more
Save the date! On 24 November 2021 IAPO will hold their first online Training Workshop on Social Media for Patient Advocacy. At the workshop, you will learn how to achieve stronger engagement on social media (Facebook and Twitter) and will also have the opportunity to put the learnings in practice. Stay tuned as registrations will […]Read more
Take a look at the scientific programme that is being prepared for EAU22? The Annual Congress will have a slightly different design in 2022, taking place over four days than the usual five. Plenary Sessions will start immediately on 18 March, so don’t miss out on those.Read more