We’re thrilled to remind you that Rare Disease Day 2024 is just around the corner, happening on 29 February. As we prepare for this important day, we’re calling on you to join us in raising awareness and advocating for equity in healthcare, social opportunity, and access to diagnosis and therapies for all people living with a rare disease.
Learn more in this newsletter about how you can contribute.
Spread the word by sharing the official Rare Disease Day video on your social media platforms, tagging us and using the hashtag #RareDiseaseDay. Available in more than 60 languages, this video shines a light on and embodies the diverse experiences of 300 million people living with a rare disease across the world.
Let’s unite and amplify our message together.
Explore the digital resources available on our website, including posters, social media infographics, and school toolkit assets (with new ones launching soon for children aged 8 to 12). These resources, translated into multiple languages, are designed to help you spread awareness and engage your community in meaningful discussions about rare diseases.
Join our Global Chain of Lights and shine a light on the rare disease community by illuminating landmarks, buildings, hospitals, your homes and offices with Rare Disease Day’s colours at 7 pm local time on 29 February.
Capture and share your photos on social media using the hashtag #LightUpForRare to contribute to this global movement of solidarity! Keep an eye on our social media channels as we will post updates throughout the day.
To learn more about the movement please click here.
Post your illumination on our interactive map
Your experiences are incredibly valuable! Share your personal story on our website, allowing the general public to understand and empathise with the challenges the rare disease community faces. We will keep posting some on our social media channels.
We also showcase your stories on our “Rare on Air Stories” podcast. Tune in now to listen and share the rare disease community’s stories.
Are you hosting or joining an event for Rare Disease Day? Don’t forget to let us know about it by posting it on our interactive map. Let’s show the power of our global community, uniting to work towards more equity for people living with a rare disease.
Let’s join forces to make Rare Disease Day 2024 impactful and meaningful. Together, we can make a difference. Thank you for your continuous effort in raising awaress for the 300 million people living with a rare disease!
Every action count!
If you have any questions feel free to email us at: [email protected].
Best wishes,
The Rare Disease Day Team