Uncategorized

Evidence of PFAS in sanitary and incontinence pads The findings come on the heels of other testing that found the forever chemicals in some popular tampons. EHN Staff December 02, 2022   Twenty-two sanitary pads, panty liners and incontinence pads have detectable levels of fluorine, an indicator of the group of chemicals known as PFAS, […]

Following the consultation with our members, EPF has finalised its official position statement on the EHDS proposal. The statement, together with the amendments, will guide our advocacy strategy and will shape our interactions with the co-legislators. Our key recommendations put the patients at the very heart of this initiative. Trust, transparency, meaningful involvement of patients and their representatives, […]

Some interesting articles in this month’s newsletter, The Public Edition, from Bowel & Bowel UK

On 15th November 2022 the EU Health Coalition has published a vision for European health, supported by a set of concrete recommendations and policy proposals designed to make it happen. The Coalition is a multi-stakeholderinitiative exploring the future of healthcare in Europe. Its new vision will be launched today in Brussels at the 3rdEU Health […]

Healthcare is undergoing a major transformation, and technology will transform how we receive or deliver healthcare. The Dynamic Coalition on Digital Health, Internet Governance Forum, United Nations, is preparing the “Digital Health” report for 2022, for which we are conducting primary research via a survey. We would like to have your valuable input on it. It would be great if […]

The PIONEER Big Data Platform offers a central and federated state-of-the-art Big Data analytic platform for prostate cancer. The platforms anonymous data is harmonised to the European Common Data Model, OMOP-CDM, following all legal and ethical requirements.  The PIONEER Big Data platform brings together diverse datasets, contributed by our Partners and Associated Members, including the […]

In the SUISSE MPC 2 study (Stress Urinary Incontinence Study to assess Safety and Efficacy of Muvon’s Muscle Precursor Cell Therapy), researchers at the University of Zurich are currently investigating a novel treatment option. This is a so-called “Phase II study”, which is designed to assess the efficacy and safety of the new treatment option.
MUVON THERAPEUTICS IS URGENTLY LOOKING FOR PATIENTS WHO ARE WILLING TO TAKE PART IN THIS TRIAL IN SWITZERLAND.

EPF joined the stakeholders’ consensus response to the proposed European Health Data Space (EHDS) On 20 October, EPF joined a group of 29 stakeholders in welcoming the European Commission’s proposal on the European Health Data Space (EHDS). The stakeholders, including medical professional and research organisations, patient representatives, industry associations, and data collaborations, strongly support the aims […]

We are pleased to present our compact Gastein Outcomes featuring an insight into discussions and key takeaways from our European Health Forum Gastein (EHFG) 2022 hybrid conference, accompanied by the witty illustrations of Floris Oudshoorn. Enjoy!

On 17 and 18 October, the Health Outcomes Observatory (H2O) project held its General Assembly meeting in Basel, Switzerland. This was the first in-person general assembly for H2O, which began in October 2020. Our EPF colleagues Lyudmil, Valentina , and  Estefania attended the meeting to represent our work on bringing patient engagement to the core of the project. The event was kicked-off […]

EUnetHTA recently started an assessment on a medical device product for the treatment of men over 18 years of age with bothersome urinary symptoms associated with recurrent anterior urethral stricture. EUnetHTA 21 highly values patient involvement. What are we looking for? Patient organisation input We are seeking patient organisation input via an online questionnaire. This questionnaire aims […]

On 21-23 September, the PROPHET project held its inaugural meeting in in Rome at the Università Cattolica del Sacro Cuore, the project coordinator.   PROPHET is a Horizon Europe project, composed of 18 European partner organisations. The project aims to create a personalised prevention roadmap for the future of healthcare in Europe. The roadmap will be co-created together with […]

Videos Peer-to-Peer Clinical Conversations Interpretation of the Meaningfulness of Symptom Reduction with Vibegron in Patients with Overactive Bladder: Analyses from EMPOWUR – Beyond the Abstract Patient perception of meaningful reductions in bothersome symptoms of overactive bladder (OAB) is lacking. VIEW The Effects of Vibegron on Ambulatory Blood Pressure in Patients With Overactive Bladder – Michael […]

Let’s end bowel cancer and bowel disease. Newsletter | October 2022 Welcome to our new newsletter We are delighted to launch our new look newsletter. We have highlighted a few fundraising and medical research stories below. Please click on the links, where you’ll also find plenty more about the work of the charity, including new blogs from […]

EAU Edu Platform on functional urology In this newsletter, we present to you the latest developments in functional urology. You can watch a video interview with Dr. Alexander Tamalunas (DE) about how Permixon™ inhibits adrenergic and non-adrenergic human prostate smooth muscle contraction. Our editorial board have selected some articles on male LUTS for you to read, and you can listen […]

Muvon Therapeutics AG, an innovative clinical-stage biotechnology company, today announced that the first patient with Stress Urinary Incontinence has been enrolled as part of the planned Phase II clinical trial (SUISSE MPC 2-Study) using its novel proprietary cell therapy platform.